The Science of Compassion: Future Directions in End-of-Life and Palliative Care

On August 10 - 12, 2011, the National Institute of Nursing Research presents The Science of Compassion: Future Directions in End-of-Life and Palliative Care, at the Hyatt Regency in Bethesda, Maryland.  The entire program is free and open to the public.

  

Overall Summit objectives include:

• Examine the current status of end-of-life and palliative care research, practice and policy


• Propose strategies to overcome barriers and ensure scientific and methodological rigor in research


• Delineate new action items that galvanize progress in this vital area of science


• Envision and map pathways to ensure a future rich with scientific endeavor and achievements

Here is the agenda

August 10, 2011

7:00 PM  -  9:00 PM   

The Ethics of Science at the End of Life: A Town Hall Discussion

Opening Remarks: Patricia A. Grady

Mistress of Ceremonies: Marie T. Hilliard

Panel Moderator: Susan Dentzer

Panelists: Joseph J. Fins; Nancy Berlinger; Karla FC Holloway

The Summit will kick off with a Town Hall event which will bring together, for the first time, individuals from a variety of scientific and practice backgrounds, members of the public with advanced illness and their caregivers, significant others, and policy makers or those driving the scientific research agenda. Highlights include opening remarks by NINR Director, Patricia A. Grady, an exploration of key issues in end-of-life and palliative care research by invited scientific leaders and an opportunity to engage in a public discussion and interactive dialogue.

August 11, 2011

8:00 AM  -  8:30 AM  

Continental Breakfast

8:00 AM  -  8:30 AM  

Dyad Programs - Meet & Greet

Junior researchers, individuals with life limiting illnesses and caregivers accepted into one of the Dyad Programs will have an opportunity to meet their assigned Mentor at a Meet and Greet breakfast before the Keynote Session.

 

8:30 AM  -  9:30 AM  

Introduction and Keynote Address

Keynote Speaker: Dr. Ira Byock

9:45 AM  -  11:35 AM

Plenary Session 1: Identifying our Strengths

Dr. Christina Miaskowski

Dr. Randy Curtis

Dr. Pamela Hinds

Dr. Jennifer Temel

Discussant: TBD

 

11:35 AM  -  1:00 PM

Working Lunch: Parents and Clinicians as Partners in Research

Box lunches will be made available by the Hyatt for $15 and will include a sandwich, chips and cookie. Please select this option if you wish to order a box lunch and stay for this engaging session.

Lunch Speakers

Dianne Gray

Advocate/Speaker/Author/CEO

Cynda Hylton Rushton PhD,RN, FAAN

Professor, Nursing and Pediatrics

Core Faculty, Berman Institute of Bioethics

Program Director, Harriet Lane Compassionate Care

1:00 PM  -  2:50 PM   

Plenary Session 2: Marshalling our Resources

Dr. Jeff Dusek

Dr. Joan Teno

Dr. Susan Hickman

Dr. Jaime Von Roen

Discussant: Dr. Chris Feudtner

 

Breakout Sessions

3:15 PM  -  4:45 PM   

Aging and Quality of Life

Moderator: Christine Richie

 

3:15 PM  -  4:45 PM   

Bio-behavioral Issues in End-of-Life and Palliative Care

Moderator: Dr. Michael Antoni

 

3:15 PM  -  4:45 PM   

Communication and Advance Care Planning

Moderator: Dr. Deborah Waldrup

 

3:15 PM  -  4:45 PM   

Complex Comorbidities in End-of-Life and Palliative Care

Moderator: Dr. James Tulsky

 

3:15 PM  -  4:45 PM   

End-of-Life and Palliative Care and the Caregiver

Moderator: Dr. Deborah McGuire

 

3:15 PM  -  4:45 PM   

Methodological Issues in End-of-Life and Palliative Care

Moderator: Dr. Amy Abernethy

 

3:15 PM  -  4:45 PM   

Pain and Symptom Management

Moderator: Dr. Diana Wilkie

 

3:15 PM  -  4:45 PM   

Pediatrics/Perinatal Issues

Moderator: Dr. Joanne Youngblut

 

3:15 PM  -  4:45 PM   

Psychosocial, Cultural and Spiritual Aspects of End-of-Life Care

Moderator: Dr. Bronwynne Evans

 

3:15 PM  -  4:45 PM   

The Era of E: The Use of New Technologies in EOLPC

Moderator: Dr. Michael Green

 

5:00 PM  -  7:00 PM   

Evening Reception and Poster Session

Poster abstracts addressing a variety of themes in end-of-life and palliative care research will be presented at a poster session in conjunction with the Summit’s Evening Reception featuring desserts, coffee and dialogue with top researchers in the field.

 

August 12, 2011

7:30 AM  -  8:00 AM  

Continental Breakfast

8:30 AM  -  11:00 AM

Introduction and Reports from Break-out Groups

11:00 AM  -  11:30 AM          

Lunch (on your own)

Please check this box if you are interested in purchasing a boxed lunch from the Hyatt for $15. This will include a sandwich, chips and cookie.

 

11:30 AM  -  1:20 PM

Plenary Session 3: Mobilizing for the Future

Dr. Amy Abernethy

Dr. Marie Bakitas

Dr. Richard Payne

Dr. Jean Kutner

Discussant: June Lunney

 

1:20 PM  -  2:00 PM   

Closing Session: Keynote and Closing Remarks

Closing Keynote Speaker: Dr. Randy Curtis